Meet the
children
Javeria was healthy at 7lbs 11. She was meeting all milestones and in many ways achieving higher than the standard targets.
Our beautiful girl passed away on 26th January 2023 surrounded by those who loved her. Our hearts are completely broken.
This is Zoe, she is 7 and lives in Leeds. Zoe developed normally as a baby, but never managed to walk independently.
This is Lilliarna and she lived in Exeter. Lilliarna was diagnosed with INAD just before her 4th birthday.